2010

   April 16, 2010 was as Friday and my BFF and I went to Atlantic City with some friends and their friends.  From the start of the trip my knee (right one) stated to ache badly, by the end of the trip I was in so much pain I wanted to chop it off.  April 20,2010 I woke up unable to move my body from the neck down, my whole body was swollen and in so much pain ( to this day I can't explain the pain).  The nice people in ER said I was a bug and it would pass.  Ha ha some bug it turned out to be.  So two weeks later I was able to move a little bite better but not all the way back to me then I can't remember who but someone started to find me a doctor with some answers.  I went to two doctors nothing and then my government worker suggested that I go to a HIV clinic, I thought she must be some kinda crazy yet I went anyway.  Let me start by saying they where the nicest bunch of people in one doctors office I've ever come across ( thank you).  After tons of tubs of blood and a week later the doctor called me on my way home from work and told me it looks like Lupus, she told what I needed to do alone with seeing a Rheumatologist.  So I called the Lupus foundation and they sent me some information and a list of doctors in the area, called a few and the one I ended up with was not for me,she did not listen not my problems and concerns.  She put me on prednisone that did nothing but made me hungry as hell.  I was still in so much pain, swollen and stiff as all get out.  I just wanted answers and she was not helping me, but I stayed with her hoping my feelings towards her change.   August 5, 2010 I'm at HSS in New York it is a good hospital so far I'm still in ass picking pain an more to put it mildly, but now I move more freely without as pain all the time.   I guess the 26 pills I pop all day play a part in the way I move.  It's been a very interesting year and some change so far can't wait see what happens in the next 6 months. TTFN